Ethan is one of Claira's heart buddies that could use your prayers right not. In a message from his Mom ... "We leave early this Thursday, March 26th, for Ethan's heart cath. It is scheduled for 7:30 a.m. In the heart cath, they will be plugging a fenestration hole that they put in the Fontan (tube that goes to the lungs) to allow more blood going to the lungs for oxygen. The tube was put in his last heart surgery, June 2008. Please pray for Ethan, Brian & I. Please pray for Dr. Sperrazza (the cardiologist performing the heart cath), nurses & anesthesiologist taking care of Ethan. Please pray that Ethan acclimates to more blood going to his lungs smoothly. Thank you so much for your prayers. We appreciate them so much."
Tuesday, March 24, 2009
Wednesday, March 11, 2009
Claira burped today! Why is that a big deal you ask? Well ... 1 week after her heart surgery, she had a feeding tube placed directly into her stomach so we could force food into her body. During the surgery she had a fundoplication, which means that her stomach was wrapped around her esophagus. The hope with this procedure was to keep Claira from vomitting her, so desperately needed, nutrition. The bad side is that she couldn't vomitt if she had a virus, and ... she couldn't burp! We were told it would start to loosen up in a few years, and that she'd be fully restored by the time she was an adult. The first few days after her procedure were miserable for her while we learned how to manually burp her, even though her tummy was very full of gas. After her mickey button was removed, there was no way to relieve the gas or "back-up" except to wait for her body to move it the other direction!
So ... now do you understand our excitement? She burped!