Sunday, June 3, 2007

Can I kiss her now?

That's what my nephew Dylan asked the other day when he saw Claira for the first time since her surgery. The last time he was around her was right after her first trip to the hospital. He had leaned into her car seat to kiss her and I ... well ... I sort of freaked. I was so obsessed with keeping her away from other people, especially children. Obviously he remembered that and very sweetly asked for permission before he got close. Gladly I was able to say "Yes ... you can kiss her now".
Friday she had another echo-cardiogram at Dr. Kimberling's office. The scar tissue on her aorta is looking better and is no longer a concern. We no longer have to give her Digoxin and Lasix (heart medications). He said that in 5 to 10 years from now we may have to fix her aorta, but until then she's doing great! What a relief!
She weighed 14 lbs and 5 ozs. She's gained so much weight that Tom and I feel she looks like a different baby. What an amazing year 2007 has been for us.
From here we will continue to work with speech therapy as we try to get her to eat. She is still taking baby food but very minimally ... maybe a tablespoon at a time. I've gone from buying stage 1 baby food and adding lots of cereal to thicken to trying stage 3 baby foods that have more flavor and variety. Maybe that will make a difference. We have a long while before we're able to think about removing the button. Oh well, one thing we've learned is that this girl can accomplish anything!

2 comments:

*Merry Girls* said...

Oh Sus, that is just great news you all are in the clear for atleast a few more years!! Maybe by the time she is 5-10 years old the Doc's will just come up with a pill to fix her Aorta. :-D

Anonymous said...

Susan & Tom---
Just wanted to tell you how happy I am about Claira's recovery! What a journey it has been for all of you!
All my best---
Leah

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