Movin' right along

We recently purchased a rubbery-top sippy cup for Claira. I cut part of the spout out so that she wouldn't have to suck to drink. Amazingly ... she's drinking water! That's all she'll drink (for some reason she doesn't take anything else from a cup) but who cares?!? She's drinking! Combine that with the fact that she's eating everything a healthy 10 month old should be eating ... we're almost there ... free of the tube feedings that is!
At her last cardiology appointment she got a huge welcome as everyone was thrilled to see how much weight she'd gained. Dr. Kimberling wants to do another echo in 6 months. If the scar tissue on her aorta is still the same we'll go to yearly visits. When she turns five they'll do another cathyter procedure to open the aorta more. If that doesn't work she will have to go through another surgery. But ... that's a long way away and who knows what could happen in 4 years! She's already an ongoing miracle.