Check-up

Claira lost another 1.5 ounces over the weekend. I can only imagine how much worse that would have been if we hadn't put the tube in. She has another cold and this time a fever as well. You can really tell she doesn't feel good. Her little eyes are red and she just isn't as active as she usually is. We are to start her feeds sooner in the day if we feel like she's not going to get as much on her own. That way we can ensure she'll get the full 20 ounces. Even though it set us back a bit, I'm really glad we took the tube out last week. It confirmed in our minds that she truly does need it right now. It also answered a few questions I've had. Such as ... is it possible that she doesn't really need the additional calories? If that were true, she would have gained weight on fewer ounces per day. I've also wondered if she eat would better if the tube were gone now that the RSV had improved.
We're keeping our appointment in OKC on the 22nd, unless they have a cancellation and are able to get us in sooner. Her pediatrician admitted that his biased opinion is that her feeding problems are due to her heart ... but that he has to believe what the cardiologist is saying. That's why we need to start praying for the doctors that will be seeing her in a few weeks. We need to pray for their minds to be opened and to be able to know what is truly going on. I know this has got to be hard on little Claira. Bless her heart.