Bless Her Heart

Claira did improve a tiny bit this week. She gained 1 oz since last Thursday. Because I've logged every feeding since then, the doctor was able to determine how many calories she's getting in a day. Not enough I might add! He said to continue everything we're doing and that we'll try another path and see another specialist, an endocrynologist. They did a urine test, which involved a cathytyr. It was terrible because she had thrown everything up just a few minutes before, there was literally nothing for them to draw from her bladder. After pushing on her awhile they were able to get a teaspoon. The lab pricked her heel again for a more extensive metabolic test. We won't get the results back on either of these for another week or two. In two days we go to the hospital again for a sweat test which will screen for Cystic Fibrosis.
New subject for prayers ... give Susan patience! This is killing me!