Okay, I'll say it again ...

I love our new pediatrician! Thursday morning before our follow-up appointment I put my boxing gloves on and was ready for a fight ... I was prepared to tell the doctor that he needed to back me up in this and help me get answers! I also wanted his support in getting a second opinion (not to mention the fact that I had to have a referral first). Once I got there the gloves came off, because he immediately told me what I wanted to hear, that he was not going to give up on her and that we would find a cause for her eating problems. He not only supported me on the second opinion but thought it was a good idea. He agreed with me that calling Claira a "bad eater" is not a medical diagnosis but rather an effect. He told me that he's already consulted with a developmental pediatrician named Dr. Colewell. I mentioned him before thinking he was an endocrinologist. He is a specialist among pediatricians who takes on difficult cases and researches with other doctors around the world to find a diagnosis. He has also taken care of our niece Mikayla who has cerebral palsy and my sister said he is a wonderful, loving doctor.
Friday we met with the cardiologist and she maintains the eating problems are not heart related. She said she's not going to do the heart cath because she doesn't feel a reason to do it. She even said that needing 27 calories per ounce was not because of her heart, it was just because she needed it to gain weight. Duh!?! She was a little more clear with me about her plans for her heart ... because Claira's holes are moderately sized she has a 50% chance of them closing enough to never need surgery ... that's definitely good news. They usually give babies 6 months to a year to let this happen.